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My dad: "Emily, this risotto . . ."
My mom: "It's just delicious."
Gus's mom: "Oh, thanks. I'd be happy to give you the recipe."
Gus, swallowing a bite: "You know, the primary taste I'm getting is not-Oranjee."
Me: "Good observation, Gus. This food, while delicious, does not taste like Oranjee."
My mom: "Hazel."
Gus: "It tastes like . . ."
Me: "Food."
Gus: "Yes, precisely. It tastes like food, excellently prepared. But it does not taste, how do I put this delicately . . . ?"
Me: "It does not taste like G.o.d Himself cooked heaven into a series of five dishes which were then served to you accompanied by several luminous b.a.l.l.s of fermented, bubbly plasma while actual and literal flower petals floated down all around your ca.n.a.l-side dinner table."
Gus: "Nicely phrased."
Gus's father: "Our children are weird."
My dad: "Nicely phrased."
A week after our dinner, Gus ended up in the ER with chest pain, and they admitted him overnight, so I drove over to Memorial the next morning and visited him on the fourth floor. I hadn't been to Memorial since visiting Isaac. It didn't have any of the cloyingly bright primary colorpainted walls or the framed paintings of dogs driving cars that one found at Children's, but the absolute sterility of the place made me nostalgic for the happy-kid bulls.h.i.t at Children's. Memorial was so functional. It was a storage facility. A prematorium.
When the elevator doors opened on the fourth floor, I saw Gus's mom pacing in the waiting room, talking on a cell phone. She hung up quickly, then hugged me and offered to take my cart.
"I'm okay," I said. "How's Gus?"
"He had a tough night, Hazel," she said. "His heart is working too hard. He needs to scale back on activity. Wheelchairs from here on out. They're putting him on some new medicine that should be better for the pain. His sisters just drove in."
"Okay," I said. "Can I see him?"
She put her arm around me and squeezed my shoulder. It felt weird. "You know we love you, Hazel, but right now we just need to be a family. Gus agrees with that. Okay?"
"Okay," I said.
"I'll tell him you visited."
"Okay," I said. "I'm just gonna read here for a while, I think."
She went down the hall, back to where he was. I understood, but I still missed him, still thought maybe I was missing my last chance to see him, to say good-bye or whatever. The waiting room was all brown carpet and brown overstuffed cloth chairs. I sat in a love seat for a while, my oxygen cart tucked by my feet. I'd worn my Chuck Taylors and my Ceci n'est pas une pipe shirt, the exact outfit I'd been wearing two weeks before on the Late Afternoon of the Venn Diagram, and he wouldn't see it. I started scrolling through the pictures on my phone, a backward flip-book of the last few months, beginning with him and Isaac outside of Monica's house and ending with the first picture I'd taken of him, on the drive to Funky Bones. It seemed like forever ago, like we'd had this brief but still infinite forever. Some infinities are bigger than other infinities.
Two weeks later, I wheeled Gus across the art park toward Funky Bones with one entire bottle of very expensive champagne and my oxygen tank in his lap. The champagne had been donated by one of Gus's doctors-Gus being the kind of person who inspires doctors to give their best bottles of champagne to children. We sat, Gus in his chair and me on the damp gra.s.s, as near to Funky Bones as we could get him in the chair. I pointed at the little kids goading each other to jump from rib cage to shoulder and Gus answered just loud enough for me to hear over the din, "Last time, I imagined myself as the kid. This time, the skeleton."
We drank from paper Winnie-the-Pooh cups.
CHAPTER SIXTEEN.
A typical day with late-stage Gus: I went over to his house about noon, after he had eaten and puked up breakfast. He met me at the door in his wheelchair, no longer the muscular, gorgeous boy who stared at me at Support Group, but still half smiling, still smoking his unlit cigarette, his blue eyes bright and alive.
We ate lunch with his parents at the dining room table. Peanut-b.u.t.ter-and-jelly sandwiches and last night's asparagus. Gus didn't eat. I asked how he was feeling.
"Grand," he said. "And you?"
"Good. What'd you do last night?"
"I slept quite a lot. I want to write you a sequel, Hazel Grace, but I'm just so d.a.m.ned tired all the time."
"You can just tell it to me," I said.
"Well, I stand by my preVan Houten a.n.a.lysis of the Dutch Tulip Man. Not a con man, but not as rich as he was letting on."
"And what about Anna's mom?"
"Haven't settled on an opinion there. Patience, Gra.s.shopper." Augustus smiled. His parents were quiet, watching him, never looking away, like they just wanted to enjoy The Gus Waters Show while it was still in town. "Sometimes I dream that I'm writing a memoir. A memoir would be just the thing to keep me in the hearts and memories of my adoring public."
"Why do you need an adoring public when you've got me?" I asked.
"Hazel Grace, when you're as charming and physically attractive as myself, it's easy enough to win over people you meet. But getting strangers to love you . . . now, that's the trick."
I rolled my eyes.
After lunch, we went outside to the backyard. He was still well enough to push his own wheelchair, pulling miniature wheelies to get the front wheels over the b.u.mp in the doorway. Still athletic, in spite of it all, blessed with balance and quick reflexes that even the abundant narcotics could not fully mask.
His parents stayed inside, but when I glanced back into the dining room, they were always watching us.
We sat out there in silence for a minute and then Gus said, "I wish we had that swing set sometimes."
"The one from my backyard?"
"Yeah. My nostalgia is so extreme that I am capable of missing a swing my b.u.t.t never actually touched."
"Nostalgia is a side effect of cancer," I told him.
"Nah, nostalgia is a side effect of dying," he answered. Above us, the wind blew and the branching shadows rearranged themselves on our skin. Gus squeezed my hand. "It is a good life, Hazel Grace."
We went inside when he needed meds, which were pressed into him along with liquid nutrition through his G-tube, a bit of plastic that disappeared into his belly. He was quiet for a while, zoned out. His mom wanted him to take a nap, but he kept shaking his head no when she suggested it, so we just let him sit there half asleep in the chair for a while.
His parents watched an old video of Gus with his sisters-they were probably my age and Gus was about five. They were playing basketball in the driveway of a different house, and even though Gus was tiny, he could dribble like he'd been born doing it, running circles around his sisters as they laughed. It was the first time I'd even seen him play basketball. "He was good," I said.
"Should've seen him in high school," his dad said. "Started varsity as a freshman."
Gus mumbled, "Can I go downstairs?"
His mom and dad wheeled the chair downstairs with Gus still in it, bouncing down crazily in a way that would have been dangerous if danger retained its relevance, and then they left us alone. He got into bed and we lay there together under the covers, me on my side and Gus on his back, my head on his bony shoulder, his heat radiating through his polo shirt and into my skin, my feet tangled with his real foot, my hand on his cheek.
When I got his face nose-touchingly close so that I could only see his eyes, I couldn't tell he was sick. We kissed for a while and then lay together listening to The Hectic Glow's eponymous alb.u.m, and eventually we fell asleep like that, a quantum entanglement of tubes and bodies.
We woke up later and arranged an armada of pillows so that we could sit comfortably against the edge of the bed and played Counterinsurgence 2: The Price of Dawn. I sucked at it, of course, but my sucking was useful to him: It made it easier for him to die beautifully, to jump in front of a sniper's bullet and sacrifice himself for me, or else to kill a sentry who was just about to shoot me. How he reveled in saving me. He shouted, "You will not kill my girlfriend today, International Terrorist of Ambiguous Nationality!"
It crossed my mind to fake a choking incident or something so that he might give me the Heimlich. Maybe then he could rid himself of this fear that his life had been lived and lost for no greater good. But then I imagined him being physically unable to Heimlich, and me having to reveal that it was all a ruse, and the ensuing mutual humiliation.
It's hard as h.e.l.l to hold on to your dignity when the risen sun is too bright in your losing eyes, and that's what I was thinking about as we hunted for bad guys through the ruins of a city that didn't exist.
Finally, his dad came down and dragged Gus back upstairs, and in the entryway, beneath an Encouragement telling me that Friends Are Forever, I knelt to kiss him good night. I went home and ate dinner with my parents, leaving Gus to eat (and puke up) his own dinner.
After some TV, I went to sleep.
I woke up.
Around noon, I went over there again.
CHAPTER SEVENTEEN.
One morning, a month after returning home from Amsterdam, I drove over to his house. His parents told me he was still sleeping downstairs, so I knocked loudly on the bas.e.m.e.nt door before entering, then asked, "Gus?"
I found him mumbling in a language of his own creation. He'd p.i.s.sed the bed. It was awful. I couldn't even look, really. I just shouted for his parents and they came down, and I went upstairs while they cleaned him up.
When I came back down, he was slowly waking up out of the narcotics to the excruciating day. I arranged his pillows so we could play Counterinsurgence on the bare sheetless mattress, but he was so tired and out of it that he sucked almost as bad as I did, and we couldn't go five minutes without both getting dead. Not fancy heroic deaths either, just careless ones.
I didn't really say anything to him. I almost wanted him to forget I was there, I guess, and I was hoping he didn't remember that I'd found the boy I love deranged in a wide pool of his own p.i.s.s. I kept kind of hoping that he'd look over at me and say, "Oh, Hazel Grace. How'd you get here?"
But unfortunately, he remembered. "With each pa.s.sing minute, I'm developing a deeper appreciation of the word mortified," he said finally.
"I've p.i.s.sed the bed, Gus, believe me. It's no big deal."
"You used," he said, and then took a sharp breath, "to call me Augustus."
"You know," he said after a while, "it's kids' stuff, but I always thought my obituary would be in all the newspapers, that I'd have a story worth telling. I always had this secret suspicion that I was special."
"You are," I said.
"You know what I mean, though," he said.
I did know what he meant. I just didn't agree. "I don't care if the New York Times writes an obituary for me. I just want you to write one," I told him. "You say you're not special because the world doesn't know about you, but that's an insult to me. I know about you."
"I don't think I'm gonna make it to write your obituary," he said, instead of apologizing.
I was so frustrated with him. "I just want to be enough for you, but I never can be. This can never be enough for you. But this is all you get. You get me, and your family, and this world. This is your life. I'm sorry if it sucks. But you're not going to be the first man on Mars, and you're not going to be an NBA star, and you're not going to hunt n.a.z.is. I mean, look at yourself, Gus." He didn't respond. "I don't mean-" I started.
"Oh, you meant it," he interrupted. I started to apologize and he said, "No, I'm sorry. You're right. Let's just play."
So we just played.
CHAPTER EIGHTEEN.
I woke up to my phone singing a song by The Hectic Glow. Gus's favorite. That meant he was calling-or someone was calling from his phone. I glanced at the alarm clock: 2:35 A.M. He's gone, I thought as everything inside of me collapsed into a singularity.
I could barely creak out a "h.e.l.lo?"
I waited for the sound of a parent's annihilated voice.
"Hazel Grace," Augustus said weakly.
"Oh, thank G.o.d it's you. Hi. Hi, I love you."
"Hazel Grace, I'm at the gas station. Something's wrong. You gotta help me."
"What? Where are you?"
"The Speedway at Eighty-sixth and Ditch. I did something wrong with the G-tube and I can't figure it out and-"
"I'm calling nine-one-one," I said.
"No no no no no, they'll take me to a hospital. Hazel, listen to me. Do not call nine-one-one or my parents I will never forgive you don't please just come please just come and fix my G.o.dd.a.m.ned G-tube. I'm just, G.o.d, this is the stupidest thing. I don't want my parents to know I'm gone. Please. I have the medicine with me; I just can't get it in. Please." He was crying. I'd never heard him sob like this except from outside his house before Amsterdam.
"Okay," I said. "I'm leaving now."
I took the BiPAP off and connected myself to an oxygen tank, lifted the tank into my cart, and put on sneakers to go with my pink cotton pajama pants and a Butler basketball T-shirt, which had originally been Gus's. I grabbed the keys from the kitchen drawer where Mom kept them and wrote a note in case they woke up while I was gone.
Went to check on Gus. It's important. Sorry.
Love, H As I drove the couple miles to the gas station, I woke up enough to wonder why Gus had left the house in the middle of the night. Maybe he'd been hallucinating, or his martyrdom fantasies had gotten the better of him.
I sped up Ditch Road past flashing yellow lights, going too fast partly to reach him and partly in the hopes a cop would pull me over and give me an excuse to tell someone that my dying boyfriend was stuck outside of a gas station with a malfunctioning G-tube. But no cop showed up to make my decision for me.